Tag: identity

  • Are You Comfortable Being Deaf/Hard of Hearing?

    “My son has some issues with being hard of hearing,” a mom recently shared with me. I glanced at her son. He seemed ill at ease.

    I nodded.

    And I understood.

    Because you see, I was in that kid’s shoes many years ago. I grew up hard of hearing and when I received a hearing aid at the age of nine, I rebelled. I didn’t want anything to do with it. Frankly, I didn’t need it. I was fine, thankyouverymuch.

    I wore it during school hours, partly because I was told that I had to and partly because it made things louder, not necessarily clearer–but louder. I was embarassed about that hearing aid. I hated it. I hid it. That piece of plastic reminded me that I was different from my peers. That I stood out. So I did my best to blend in. I wore my hair down. I smiled and nodded and laughed along with jokes and conversations that I either caught snippets of or had no clue at all what was being said. When confronted with the idea that I was hard of hearing, I responded with, “Oh, sometimes I can’t hear what you say.” Never mind that I was lipreading to comprehend conversation, as I had little ability to understand words via auditory means alone.

    So I understood where that mom was coming from, and I understood that feeling of being uncomfortable. I wrote about Embracing the Identity of Being Deaf or Hard of Hearing previously. Ironically, just this weekend, I came across two articles that talk about learning to accept being hard of hearing:

    From Mail Online/Disability Alert, Liz Jones shares her experience of finally labeling her hearing loss and coming to terms with it:

    I received some bad news two weeks ago. After years of refusing to accept I had a problem with my hearing, I finally decided to go to a clinic and find out the worst, which is that I have, at best, 30 per cent hearing in each ear.

    It was weird, hearing (if that’s the right word) that I am officially disabled or impaired.

    But I suppose I can at last tell people I am hard of hearing – which hopefully they will understand and make allowances for – rather than doing what I have been doing up until now, which is to try to appear normal.

    This has only made people – friends, colleagues on the phone, shop assistants and so on – think I am merely mad, rude or eccentric.

    I first noticed I had a problem at school. I could barely follow what the teachers were saying, although they never seemed to notice.

    I avoided parties and school discos because I could never join in the conversation. I would just stand there looking awkward.

    Over at the Dallas News, Jeanna Mead shares her experience of “coming out of the closet” about being hard of hearing:

    This is a hard column to write – I have to let go of years, decades, of hiding my hearing loss, and now I am about to “come out of the closet,” so to speak. I am hearing-impaired, practically deaf – but that is only part of the story.

    That is not who I am; I define myself by so many other things, and way, way, way down on the bottom of the list is “hearing impaired.”

    I lost my hearing when I was 4, which explains why my speech is so good, but I have to give credit where credit is due; my Mema worked tirelessly to coach me to speak correctly, holding my hand to her throat while repeating words over and over until I could say them the right way.

    It wasn’t until I was an adult that I realized there were hearing people in this world who could not pronounce Mexia, Rowlett, Louisiana, Tawakoni or even “congratulations.”

    Getting comfortable being deaf and hard of hearing is often a journey and over at Tania Says, Tania Karas shares a life-changing day that occured when she stepped into a deaf classroom for the first time:

    Hale has a pretty big deaf program, spanning from preschool until 8th grade. The students have a wide range of hearing loss. All use sign, but all use their voices as well. The classrooms are unbelievably deaf-friendly; there is one teacher for every 3-4 students, a combination of sign and speech, resource and speech pathology teachers, and a whole bunch of kids who just understood each other. I had never seen a deaf classroom before, so this was all like a dream world to me. Communication just flowed so seamlessly, much unlike the constant confusion I have encountered all my life in mainstream/”hearing” classrooms.

    But what got me the most was that these kids were happy. They had crazy-colored ear molds and bright cochlear implants on display for the whole world to see. The philosophy behind the instruction at Hale was to take pride in one’s deafness. The students’ hearing loss was just a small part of their vibrant personalities – when I saw them in class, I didn’t think “deaf kids,” I thought “happy kids.” And I kinda wanted to be like them.

    And that’s what I wish for every deaf and hard of hearing child or adult– to become so comfortable with being deaf or hard of hearing that you’re happy as well.

  • Embracing the Identity of Being Deaf and Hard of Hearing

    When I was growing up, I wasn’t comfortable being hard of hearing.  I hid my hearing aid under my hair and as soon as I arrived home from school, I tossed it on a ledge.  I never touched the hearing aid during the summer.  You’d almost never find me asserting myself by telling someone, “I’m hard of hearing, I need you to face me when you talk.”  Only among close friends, would I have the courage to say, “What? Repeat that, would ya?”

    So what happens when you’re not comfortable being deaf or hard of hearing?  You hide it.  You do everything possible to “fit in” and “look normal.”  You develop an impressive arsenal of social bluffing skills.  You nod along in conversation, figure out when to put in a thoughtful, “hmmm,” and ask questions that might lead you to a clue in the topic that is firing back and forth in a group.

    When I became deaf at the age of nineteen, I changed in many ways.  I learned American Sign Language and discovered many new deaf and hard of hearing friends for the first time in my life.  Slowly, I tapered off the bluffing.  I learned to take pride in being deaf, to be open about it, to rejoice in this whole journey.  I can’t even begin to describe the differences.  For one thing, you’d never catch me showing off my hearing aids on public television.  Yes, those are my blue earmolds on ABC– aren’t they purty?

    I love stories like this one:  Social Bluffing, by Katie.  In her post, Katie shares:

    I have decided to be more honest with myself and with people I don’t know re: my hearing impairment.  I’ve decided that it is perfectly OK to tell the cashier, the waitress or whomever I’m speaking to that I have a hearing impairment, and could they please talk slower and speak up for me? 

    and:

    In my experience, I’ve also discovered that when you are honest with people and tell them why they need to repeat what they said or word it differently for you, they are more than accommodating in the request.   I am learning to give people more credit than I did in the past, which has allowed me a more positive view of the world.

    In her guest post, Katie shares that she recently began this journey of becoming hard of hearing just a few years ago.  So taking the action to assert herself is part of the path of learning to become comfortable about being hard of hearing and getting the communication access that is needed.  Little by little, confidence comes from taking baby steps and then one day, you find yourself asserting your communication needs with relative ease.

    Just the other day, I received this comment sent via the contact me form on this blog.  I received permission to share it here:

    Hi there Karen

    I am Elias and I am 34yo from way down under 🙂

    All my life i was in denial of my impairment and sort of closed myself from the deaf community. It wasn’t until a personal crisis that forced me to take a deep look inside myself.

    I looked up on the internet for inspiration and help and  i came across Stephen Hopson and it was what i needed. I was amazed to learn he is a pilot and motiovational speaker. The more i read about his life the more inspired i became. He woke me up so much and realised that I can do more for myself. I realise i finally knew what i wanted to do for myself and the world.

    Then i came across your blog and for the past few months i read as many as i can from your blogs. All i can say is wow.

    I wish to say a big thank you for showing me that it is okay to be deaf. I found your blog through Stephen
    When i decided to check out your blog, i was amazed by your life experiences. Thank you for showing me that it’s okay to be deaf.

    I plan to enter the world of Blogging hopefully soon.

    Again thank you!

    Elias

    Thank you, Elias, for sharing your journey with me.  I look forward to reading about your venture into the blogging world.

    You’re right, Elias, it’s ok to be deaf.