Category: Uncategorized

  • Cochlear Implant Article Printed

    Back in February, I started interviewing families and deaf adults with cochlear implants for an upcoming article in the Hands & Voices Communicator. The idea for this article came about when my daughter’s friend had an implant that suddenly stopped working. It was a tough journey for her to be re-implanted and adjust to new mappings. She is now enjoying her Beatles music through her implant again.

    If you recall from my previous post, I took some criticsm for attempting to write this article.

    It was one of the hardest articles I’ve ever written.

    Twists and Turns: Journeys with Implants is available in the current Hands & Voices Communicator. Join Hands & Voices and receive quarterly issues of this excellent newsletter.

    Here’s an excerpt from Twists and Turns:

    “Families who choose implants are set up to either succeed with the implant, or fail,” said Susan Raad, owner of Communication Clubhouse in Illinois and mom to two deaf and hard of hearing children.

    Susan’s son, now 13, obtained an implant at 18 months with good results.

    “The very first day, he responded to a dog barking!” Susan recalled.

    Despite a background in speech, language and audiology, Susan found herself vulnerable as a parent in a field that is often polarized. Prior to obtaining the implant, a doctor suggested that she pursue a certain method of communication, and Susan found herself pursuing it, even though her son’s audiogram showed no response.

    “Even with my background, I found myself acting in irrational ways based on my hopes as a parent, rather than what I knew from my academic background. We often talk about implants in an either/or situation. If the implant takes off, it is considered a ‘success’ and our child has ‘succeeded.’ But if an implant doesn’t work for a child,” she continued, “it is considered a ‘failure’ and parents begin to question what they did wrong. We begin to humanize the technology.”

    “What’s more,” said Susan, “it’s a technological crapshoot. Most of the time, the odds are in our favor, but what do we do when it doesn’t go in our favor? Families end up blaming themselves, feeling like they haven’t done enough.”

    Susan believes that the idea of “choice” is a misleading one. “If parents are told they can simply choose a path for their child based on the decisions they make,” she says, “then what happens if their child isn’t able to function on that chosen path—does that mean they’ve failed?”

    She shakes her head.

  • The Thinking Blogger Award Goes to Deaf Mom


    Angie Lee from What Floats My Boat has bestowed the Thinking Blogger Award on this humble blog. So if you’ll excuse me, I’ve got to get my hair done and pick out my evening gown. And a speech, I must have a speech!

    All kidding aside, while reading Angie Lee’s blog, I came across her poem about American Sign Language. Angie Lee’s husband, son and step-daughter are deaf. Here’s what she wrote:

    Seeing your hands in conversation
    Is witnessing the most beautiful symphony ever composed.
    A world full of words
    Dancing gracefully from your fingertips . . .
    Music in motion,
    A melody I see with my eyes and hear with my heart. . .
    And having listened, I now know the meaning of harmony.

    Beautiful!

    So of course, this got me to thinking about other blogs that make ME think:

    Glenda Watson Hyatt at I’ll Do It Myself

    Phil Gerbyshak at Make It Great!

    Wendy Piersall at Emoms At Home

    Mark Drolsbaugh at Drolz Uncensored

    Terry Starbucker from Ramblings of a Glass Half Full

    Dawn Colclasure from Dawn Colclasure’s Blog

    Check them out– you’ll enjoy the read!


    Personalized Children's Books

  • Another Crazy Lawsuit– Warlick and Ramsell Argue Over Bears Tickets


    Once upon a time, Douglas Warlick and Donald Ramsell were friends. The two lawyers from a western suburb of Chicago, attended Bears games together for over twenty years.

    Back in 1985, Warlick purchased four Bears season tickets in his name. Just four years ago, Ramsell began purchasing two of the tickets from Warlick in an “agreement” that the two friends struck up to split costs. No contract was signed nor anything written down.

    The friendship began to go sour, and on May 30th of this year, Ramsell filed a lawsuit in court to formally obtain his half of the tickets.

    Warlick, in a recent Chicago Tribune article, summed the situation up perfectly: “I’m still in shock — that’s so obnoxious, so immature,” he said. “He could’ve just picked up the phone. I think ‘sad’ is an appropriate word for somebody who does something like that.”

  • When Adversity Turns Into a Blessing

    Stephen Hopson, over at Adversity University, has tagged me for a post on the Secrets of Overcoming Adversity. I thought I’d share about a tough time in my life which actually turned into a blessing:

    I grew up as a “solitaire”, a term that Gina Oliva, author of Alone in the Mainstream uses to describe a deaf or hard of hearing child who is the only one in a school of hearing students.

    Born with normal hearing, I became hard of hearing in elementary school and obtained my first hearing aid at the age of nine. By the time I started middle school, I was lipreading my teachers and fellow students and fooling everyone into thinking that I could hear pretty well.

    I was even fooling myself.

    When I was in eighth grade, it became apparent to my mom that I needed more help in school. Up to that point, I was getting yearly hearing tests and speech therapy–that was the extent of my “support services” at school. My mother tried to convince me to attend a local high school that had a program serving deaf students. The students used sign language interpreters.

    “No way,” I told my mom. “I’m going to attend the same high school with all of my hearing friends. I’m not deaf.”

    Never mind the fact that I couldn’t use the telephone nor follow group conversations. Every day, after school, I took my hearing aid off and kept it off each summer. The hearing aid often gave me headaches and it didn’t contribute much to my understanding of speech. I was relying nearly 100% on my ability to lipread.

    So off I went to high school. I was fortunate to have a group of friends who I could communicate with. I hung out with a couple of girls from the swim team and I fell in love with a boy on the guys’ swim team. The telephone was a nightmare for me. Since my mom was deaf, I often had to wait until my father arrived home from work and asked him to make phone calls for me. If he was in a cranky mood, I was out of luck. I quickly learned to ask my local friends down the block to make calls for me. It sure wasn’t fun communicating through a third party to set up dates.

    I quickly became the “Queen of Social Bluffing” in high school. It was the only way to save face; if a bunch of people at a party were laughing together, you’d find me laughing right along. Heaven forbid if anyone came in and asked me, “What’s everyone laughing about?” I’d mumble something and head off to the bathroom.

    After I graduated from high school, I attended a local community college. I applied for jobs around town and ended up working at a neighbor’s restaurant washing dishes. I also babysat for extra money. Even though I still had my core group of friends, I found myself feeling lonely. I could communicate one-on-one just fine, but I sure wasn’t having much fun at parties. At one point, I stopped going out at night because it was too hard to communicate in the dark or even with a single light on in a car.

    I had visited Northern Illinois University during my senior year in high school and saw that they had two floors in a co-ed dorm filled with deaf and hard of hearing students. Instead of jumping at the chance to go away to college and meet other deaf and hard of hearing students, I turned it down for the same reason as I turned down the high school program: I didn’t know American Sign Language. I didn’t need it. I was doing just fine bluffing my way through life, thankyouverymuch.

    By the end of my first year at the community college, I knew I needed to go away to college. Going away was going to be my only ticket out of the house, because I couldn’t seem to find a job that was going to get me an apartment. So I applied to NIU and I was accepted.

    That summer, I was barefooting (waterskiing on bare feet) a lot on Christie Lake. One day, I turned to cross the wake and fell. I slammed into the water sideways–there was no time to tuck and roll. I was a little sore afterwards and my ears felt as if they were filled with water and I couldn’t hear. In the past, I could shake my head and blow my ears and I would be fine. This time, nothing happened. I just shrugged it off, thinking it would clear up later.

    The day I headed out to NIU, I still couldn’t hear. Just before heading out the door, I started bawling. My mom was upset enough about having her youngest go off to college, so she urged me to reconsider. “You can stay here and finish college!” I shook my head and we headed off.

    As it turned out, becoming deaf was a blessing in disguise. While I mourned the loss of hearing and had to get used to wearing a hearing aid 24/7, I was also learning a new visual language and discovering a whole group of deaf and hard of hearing people to communicate with. I met my husband and fell in love, not only with him but with a whole group of friends that I still hang around with today.

    So today, I feel blessed to have deaf, hard of hearing and hearing friends and the ability to communicate with them all.

    I’m passing the Secrets of Overcoming Adversity baton on to Dawn Colclasure. Here’s her entry: Being a Burn Survivor.

    Note: It is with great sadness that I share the news that Gina Oliva’s husband recently passed away.

  • The Debt Diet and Today’s Prices

    This morning, I sat down to watch Oprah’s Debt Diet and catch up with the families that started the debt diet a year ago. The families made great strides in cutting into their debt and making some changes. Most of them reported that their marriages improved and they gained a sense of working together as a result of the Debt Diet. The advice from the money gurus (Jean Chatzky, author of Make Money, Not Excuses, David Bach, author of The Automatic Millionaire and Girl, Get Your Credit Straight!) all had the same advice: Stop spending, sell some of your stuff, increase your income, and pay off your debt.

    Sounds so simple, doesn’t it?

    The hubby and I have made some changes here and there lately and cut back on our spending and gas use. We’ve been staying home more and the kids took their lunch to school more frequently instead of purchasing the school lunches.

    Yet, this week, the Chicago Sun Times reported that food prices are on the rise and the cost of eggs has risen 81%.

    So I guess that means we’ll be eating less eggs this summer.

  • Medical Coding–A Deaf Professional Manages a Team

    (Left: Julia Anderson, right: Cathy Smyth)

    Ask Julia Anderson about her job and she’ll tell you she “loves it!” Julia is a Clinical Data Coordinator at Advocate Christ Medical Center/Hope Chidren’s Hospital in Oak Lawn, Illinois. She graduated from the National Technical Institute for the Deaf (NTID) in 1991 with a degree in Medical Records. She went on to obtain certification as a Registered Health Information Technician and Certified Coding Specialist.

    Yes, she’s been coding for 16 years and still loves it.

    Julia communicates in American Sign Language and utilizes interpreters for meetings. On the job, she had to come up with innovative ways to communicate with her co-workers. “I do not use the phone,” says Julia. “Email is my main source of communication. The associates in my hospital who I work with know that email is the best way to contact me.

    “I use paper and pen to communicate with co-workers, Julia continues. “Sometimes I will use a computer or laptop as well. If co-workers have questions, they will sign, fingerspell or email me.”

    Julia, along with another coordinator, supervises a staff of 24 medical coders and 4 unbilled staff. Julia’s path to becoming a coordinator was not an easy one. Back in 1999, while working as a coder, Julia applied to become a coordinator. She didn’t get the job and was quite disappointed. The job was given to Cathy Smyth, who happened to have a sister who was hard of hearing. As it turned out, Julia completed her internship years ago with Cathy’s sister at Advocate Christ Medical Center.

    In the beginning, Cathy and Julia communicated via paper and pencil. Cathy learned to fingerspell and slowly picked up signs. Today, Cathy and Julia communicate fluently in American Sign Language. Several other co-workers are learning sign as well.

    When the coordinator job opened up again four years ago, Cathy encouraged Julia to apply. This time, she obtained the job and continues to enjoy it today. “In my personal opinion,” Julia reflects back, “the director at that time did not think I was capable of doing the job due to the communication barrier.

    “I ended up proving her wrong when I got the second chance at the coordinator position.”

  • The Face Behind The Blog–More Stuff About Me


    I’ve been given a gentle nudge by Phil Gerbyshak to share the “other side of me.”

    The Face Behind The Blog meme was started by David Airey, who urged bloggers to show a personal side with photographs. Photographs allow the reader to get to know the blog author in a new light.

    So the other day, while browsing through several photographs on the computer, my son stopped me at the photo below:

    “Oh neat, Mom!” my son exclaimed. “Is that one of those photos where your head is on someone else’s body?”

    After the stabbing pain in my heart subsided, I informed my firstborn that yes, indeed, that was his mom’s body twenty years ago. His eyes grew wide.

    So while we’re examining the past, the photo below shows me on top of my first pyramid, rounding a bend in the lake and hanging on for dear life:

    That’s me on the upper left and my friend Jenny Oehl on the right. Bobby Kruso and Brent Greenwood are on the bottom left– but I can’t remember who the guy on the right is. I’m sure his aching back has recovered.

    Fast forward many years and many pounds later:

    I’m with my brother Dennis and my father. They just finished chopping down three pine trees and I’m hauling them off to a field on the four-wheeler.

    Now that I’m older, I’m usually found behind the wheel of the boat, dragging my kids around the lake. Here’s my youngest son on the tube, the other two have been flung off after hitting a wave.

    When I’m not blogging here, I’m usually meeting families at my early intervention job or at my staff writing job for an internet company. Every once in a while, I go out and do presentations for Hands & Voices (seen here with Jane Holtz, another mom and IL Hands & Voices board member):

    I’m married to a great guy (most of the time!) and I have three kids who occasionally pick up after themselves. I dream of having a chef, a maid and a personal shopper to take over the stuff I hate to do.

    Heck, what I need is a wife of my own!

  • Hawaii–On My List of Places to Visit


    My sister-in-law has her 50th birthday all planned out:

    She’s heading to Hawaii.

    So I’ve found a neat website where one can rent out places on Hawaii: Hawaii Beachfront Cottages. One three bedroom home can be rented for $200 per night. Keep in mind that some of the homes require a 30-day rental. Hawaii certainly isn’t cheap, but heck, for the sunset below– I’d stay 30 days myself!

    Check out this four-bedroom house that sleeps eight: Big Island House–at $1,200 per night–four couples could share a vacation together with memories to last a lifetime.

    The same site even has a blog about Hawaii: Hawaiian Beach Rental Blog.
    Now all I have to do is write a couple of bestsellers so I can join my sis-in-law next year!

  • Another Deaf Author Discovered–Connie Briscoe


    A couple of weeks ago, during a search for authors who are deaf or hard of hearing, I stumbled upon Connie Briscoe. In the mid 1990’s, Connie rocketed to the bestseller list with her first novel, Sisters and Lovers. Connie is deaf and the former editor of the American Annals of the Deaf.

    You can read more about Connie in a Gallaudet interview and in Jamie Burke’s interview.

    Connie’s newest book is Jewels, a collection of fifty stories about African American women over the age of fifty. Connie includes her own personal story in this book. I plan to order this photographic book using the gift certificates that I’ve earned from My Points–Earn Rewards at MyPoints.
    .

    Yesterday, I headed over the library and found two of her books: P. G. County and Can’t Get Enough.

    I’m on chapter three of P.G. County and fascinated by the way Connie introduces characters. I have a feeling I’m going to like her books. On page seven, they’ve already gotten into some hot, steamy action.

    I’m off to read more.