Author: Karen Putz

On Friday, I headed out to Child’s Voice after a Deaf Mentor session in the morning. This was the first time I had joined an AG Bell event. The retreat was for deaf and hard of hearing adults.

The morning session consisted of observing a child in a one-on-one session with a teacher. We then gathered in the main gym and had an “Advocacy” session with about twenty deaf and hard of hearing children from kindergarten to first grade. Many of the children had one or two cochlear implants and several of them had hearing aids. A teacher lead the discussion and began with questions about ways the children and adults could advocate when communication breaks down. The kids eagerly raised their hands to answer questions and share their advocacy tips. The teacher repeated or summarized each answer. I found that it was quite a feat to make sure that I could understand everyone and I had to get up and move around to make sure that I had access to the conversations. At one point, I missed an answer to a question and made sure that I demonstrated my own advocacy skills to get it repeated.

After a delicious lunch, the adults met with the parents from Child’s Voice and four deaf adults shared their experiences during a panel discussion. One was a lawyer from San Diego, a student in a business college, a doctoral student in Audiology and a school psychologist from Indiana School for the Deaf. We all sat in a circle and everything was captioned on a large screen. I was grateful for the captioning because I was able to lip read the deaf participants and then glance at the screen for anything that was missed.

On the drive home, I was thinking about a comment that one of the panelists shared. She mentioned that her parents attended every AG Bell convention since she was a little girl. It was during these conventions that she met other deaf and hard of hearing people and realized, “I am not alone, there are other people out there who are just like me.”

I thought it was the most important message of the day.

It’s back.

One can only liken it to Chinese Water Torture– the incessant roaring, screeching sound that exists in my head. Much like a steady drip of water, it is a constant sound that occasionally fades to the background but comes roaring back at a moment’s notice.

Tinnitus.

As a kid, I had no idea what the roaring sound was in my head. I can remember many nights of tossing and turning on a school night, trying to get some sleep and wishing that I could crawl out of my head and get away from the sound. For a long time after becoming profoundly deaf in college, I was blessed with peaceful nights of sleep. In the last few years, I’ve had a few episodes of tinnitus that fortunately, do not last long.

There are lots of Resources on Tinnitus including some interesting pills made of botanicals that one can take to reduce it.

Most of the time, hearing aids help mask the ringing sounds, but this most recent bout won’t go away even with my hearing aids in. I usually resort to hypnotherapy (something that I used when I birthed my son at home) to quiet my mind and take the focus off of the sounds. Another thing that helps is to listen to my son’s music on his Ipod.

One blast of Weird Al Yankovich and the sounds are gone.

On Saturday night, I donned my i711.com polo shirt and headed off to the new Video Relay center in Schaumburg where i711.com was hosting an open house for the community. Robyn Girad, the Community Marketing Manager for GoAmerica which operates i711, gave a power point presentation explaining the new services. If you’re not familiar with relay services, it is a service that uses a hearing operator to “relay” calls from a deaf/hard of hearing person to a hearing caller. I can make relay calls using AOL instant messenger to call my doctor, neighbor, etc. and I can also use a video relay operator to make calls also. More information is available here: Relay and Beyond.

We had so many people crowded into the new call center that there wasn’t enough room to fit everyone in. Before we knew it, the food disappeared:

Yesterday’s IEP meeting for my oldest son was a doozie. For those of you who are not familiar with IEP meetings, these are legal meetings with school personnel that outline an Individual Education Plan for students with disabilities or in special education.

Yesterday’s meeting was an Annual Review, but the hubby and I brought up a change of placement for our son. We live in a district that has a strong inclusion policy in their approach for education for children in special education. This means that our deaf and hard of hearing kids attend regular classes with accommodations such as sign language interpreters and FM systems that amplify what is spoken in the classroom. We asked for a change in schools to allow our son to attend a high school with nearly seventy other deaf kids. He would still attend classes with other hearing students, but have access to his deaf peers during lunch and other activities. He would also have the option of taking several classes that are team taught by a teacher of the deaf and classes with deaf students. This is something that is currently missing from his middle school in our district. He meets with three other hard of hearing students three times a month in a group run by the school social worker and itinerant teacher.

The district team was very mixed in their response to our request. The Special Education person running the meeting was not supportive and indicated that our request was not the Least Restrictive Environment for our son and the district couldn’t justify this placement. He’s been doing just fine in middle school, they said. Frankly, keeping our son in a high school where he is the only deaf student is indeed quite restrictive for his social/emotional development. Academically, he will do fine at either high school, but he won’t have peers that he can communicate freely with in group situations at the district high school. I actually broke down crying at this IEP meeting.

The district has decided to gather more information from us and our son via the school’s social worker and determine placement on the outcome of that report. Then the team meets again to decide which high school is the appropriate placement. We’ll be bringing an advocate with us and looking into legal counsel. Sadly, the outcome lies with the district and their interpretation of the law. I’m not sure how much our input will have an effect.

So at this moment, I have no clue as to where my son will attend high school in the fall or what our plans will be if they don’t agree with our request.

It’s party time! Five Minutes for Mom is hosting the ultimate blog party this week.

Today, you’re invited to mine! Yesterday, my daughter and I spent the day making one of my favorite treats from the Taste of Home Magazine, Pecan Delights. If you like Fannie May Pixie candy, then you’re going to fall in love with these. So grab a bite and kick back.

So those of you who are new here, welcome! I’m Karen from the state of Chicago, er um, Chicago, Illinois. I’m actually from Bolingbrook but unless I tell people that we’re right next to Naperville, (the number two city ranked as the “Best Place to Live” in Money magazine) they often have no clue about my town. I’m a deaf mom with three deaf and hard of hearing kids and a deaf husband too. You can hear the music blasting from our house clear across town.

Today, I’ve got a sick kiddo at home and an IEP meeting this morning. Thank goodness for neighbors who step in when needed.

That doesn’t stop me from crashing a couple of parties this week. Of course, I have to stop over at Groovy’s house, she’s throwing a game party. Groovy and I met on a writer’s board and she’s got a wicked sense of humor. A couple of weeks ago, she did a Google search for images under her name and my photo popped up. Groovy recently made it into the Reader’s Digest and now I tease her that the more famous she becomes, the more my photo will come up. Go, Groovy, go!

Rocks in my Dryer is hosting a unique writing challenge: write yourself a letter going back in time and reflect on some knowledge that you’ve gained.

Jenny, from Home is Where You Start From writes about homeschooling in sunny California. That’s where I wish I was right now…

I expected some desserts on Dessert Diva but I found a fellow photographer after my own heart: she’s got my favorite Robert Frost poem on her site, “The Road Not Taken.”

Another writer and another Karen shares about life on Write From Karen.

So tonight, I’m planning to kick back with the Pecan Delights that are left over and read more!

Howie Seago provided entertainment on Friday night at the Illinois Teachers for Deaf and Hard of Hearing conference. Howie Seago is a deaf actor who has done many plays, television shows (Star Trek, The Next Generation, Hunter and The Equalizer) and a movie, Beyond Silence.

During his comedy routine, Howie called up three deaf individuals to the stage: Chicago locals Gary Etkie and Terry Kourt, and Mark Bella from California. Howie announced that the skit was called “The Three Tenors” and he would be teaching them to sing a song titled, O Sole Mio. The three guys gave Howie an incredulous look; how were they going to convert their deaf voices into song?

So one by one they began to sing O Sole Mio, with Howie directing each word and wrapping their hands to keep them from signing. By the third round of singing, the audience was in stitches. June Prusak from Chicago Hearing Society was laughing so hard that Howie stopped the show momentarily so that she could regain her composure and view the rest of the show. The audience used a show of hands to judge the singing ability of each and Howie awarded them with a bottle of water for their efforts.

The next day, Jane Holtz and I did a presentation on “Hands & Voices, Supporting Families Without Bias” for the teachers. Despite being in the last time slot of the conference, we had a nice turnout.

Yesterday, I went to get a haircut and saw the February/March issue of Working Mother sitting on a display stand. I glanced through it and saw the familiar face of Marlee Matlin.

I’ve said it before and I’ll say it again, you have to admire Marlee for her continued success as a working mom and actress. A lot of peole figured she was a “one shot wonder” when she won the Academy Award as the youngest actress. Here she is today, a mom of four and still performing. She’s involved in various charities, published two children’s books and continues to be a regular Hollywood icon.

My guess is that this mom of four has a lot more dreams and accomplishments planned and we’ll be seeing her around for many more years.

“What do you do when this stretches out for the rest of your life?” commented Dr. Phil on his show today featuring the Hooker family with triplets who are deaf blind. The first half of the show gave viewers a peek into the daily life of caring for the three of them every day. Diapers, special pajamas that zip up in the back, head rocking, temper tantrums and drinks that end up on the floor. The daily struggle of trying to build up language while simply trying to survive through the day.

As I watched the show, I found myself thinking about the sheer amount of work it takes to try and communicate with three young ones using tactile sign. I noticed that one triplet had a cochlear implant, so I’m sure the family’s life includes visits to the audiologist on a regular basis for mappings. One child who is deaf blind is a challenge; three requires some daily outside help to keep your own strength going. It’s no wonder the family’s mental resources were tested to the limit.

Dr. Phil brought on Jennifer Rothschild, author of Lessons I Learned in the Dark to inspire the family. Jennifer became blind a the age of fifteen. While her story was inspiring, I really felt that Dr. Phil could have made a greater impact by bringing on an adult who was deaf blind. Brian Hubbard, for example, is a psychotherapist who happens to be deaf blind and an inspirational speaker as well.

Perhaps as a result of this show, the Hooker family will be able to connect with other families raising children who are deaf blind and adults who are deaf blind.

For a summary of the show, go here: Triplets Who Are Deaf Blind.

Imagine having your hands full with triplets. Now imagine that each of them are deaf blind–your hands would be truly full. Jamie Burke did an interview with the parents, Liz and George Hooker, when the children were close to five years of age: Deafblind Triplet Daughters.

The Hooker family will be featured on the Dr. Phil Show on Wednesday, February 28th, 2007. Check your local listings for the time.

From the Dr. Phil Show listing:

Most parents find raising a child overwhelming enough, but imagine if that child could neither see you, nor hear you. Now imagine having three children like that. Liz is the mother of the only known deafblind triplets in the world. Her three daughters are now 6 years old, but one of the girls is able to communicate at a 2-year-old level, and the other two at only 10-month-old levels. Liz’s world is consumed with their 24-hour care, plus the care of her oldest daughter, who is 10 and often times overlooked among the chaos of the triplets. After years of dealing with the girls on her own, a new man stepped into Liz’s life to fill the shoes of her ex-husband. George thought he could become Liz’s hero, but their relationship has been strained from the start and the stress is tearing them apart. See what a day in Liz and George’s lives are like, and the surprises Dr. Phil has in store for them. Plus, meet an inspirational woman who says her world turned from light to dark at the age of 15. She’s got a message for George and Liz. Don’t miss this heartbreaking and heroic story!

At a recent Parent Connection meeting over the weekend, a supervisor of deaf education mentioned that deaf and hard of hearing people often have difficulties finding employment and most are underemployed.

Many deaf and hard of hearing persons, the supervisor explained, often do not have opportunities to move up to higher positions despite being qualified to do so.

On the Hands & Voices website, the statistics are rather dismal but many of the studies are also quite old: A Snapshot of Statistics.

From the site:

Approximately 40% of deaf adults are unemployed and 90% are underemployed. (Siegel, 2000).

Underemployed simply means that someone has degrees, qualifications or skills that are not being utilized in their current employment.

The truth is a somewhat muddled picture. Today, with so much technology available, there are many more opportunities for deaf and hard of hearing persons to take on a variety of jobs that were considered unthinkable thirty years ago. We have doctors, lawyers, vets, reporters, realtors, financial advisors– the list goes on. Yet, deaf and hard of hearing persons often have a difficult time of even getting their foot in the door and obtaining an interview. The one thing that often presents a barrier is the attitude of the person doing the hiring. One has to wonder how many qualified, talented deaf and hard of hearing persons are overlooked for jobs because of the perception that their “hearing deficiencies” will present a problem.

Jo Waldron sums it up: “The worst barrier in the world is attitude.” Marlee Matlin, in a Business Week article also has something to say about attitude: All it takes to realize that a deaf person can rise to any task is a little awareness and interaction. All it takes is a little awareness. I like to say that the greatest handicap of deafness does not lie in the ear, it lies in the mind.

Check out Trudy Suggs’ article: Will Work For Food.

Thoughts, anyone?