Author: Karen Putz

  • The Dance of Language, by Sara Kennedy


    I met Sara Kennedy several years ago when I first joined the board of Hands & Voices. I knew I liked this hip mom from the beginning, as she was also a homebirth mom. Sara wrote a beautiful article about the delicate dance of language and communication and I wanted to share it with my readers:

    Not so long ago, I looked down at a 14 month old toddler in my lap after learning that she could not hear. Those intense blue eyes confounded me – did I know her? Did she know me? Communication as I had known it halted altogether. Sara Madeleine became again, in my fear of the unknown, the little stranger that she had been to me on her first day of life, before we started the dance of learning to know one another. Like most parents, I don’t think I heard another word the audiologists said after “your daughter has a profound hearing loss.”

    As a health care provider, what surprised me next was that it was up to us, as parents, to decide how we wanted to communicate with her. There weren’t reams of double blind randomized controlled trials to tell us that a majority of children learned to read and write well or to speak or to become CEO’s with this or that method. It was up to us, a couple who couldn’t yet define otoacoustic emissions or knew anything about the oppression of Deaf people in history… to choose Maddie’s first language.

    To read Sara’s full article go here: The Dance of Language.

  • Wordless Wednesday–Two Hours in a Beauty Salon

    My Mother-in-law gave me a gift certificate to her salon because a few scraggly gray hairs popped up over the summer. The kids noticed.

    “Mom, you’ve got GRAY hairs!” they announced on one beautiful sunny day. You’ll note that they added an “s” to that sentence.

    I’m no longer a dye virgin. Today, I spent two hours at the Lush salon. I had no idea a shampoo could feel so good. The last time I was shampoo’d by someone was on my wedding day (and no, it wasn’t the hubby).

    Happy Wordless Wednesday!

  • June Prusak, Manager of a Youth Program

    June Prusak has a fun job. She gets to go swimming, scuba diving, bowling, shopping, and rock climbing. She’s been hit by dodgeballs, volleyballs and basketballs. And every year in July, she gets to scream along with the other deaf and hard of hearing kids on the roller coasters.

    June is the Youth Program Coordinator at Chicago Hearing Society. She graduated from Gallaudet University with a B.S. degree in Leisure Studies, Therapeutic Recreation. For the last ten and half years, she’s been planning fun activities for deaf and hard of hearing youth age seven to high school in the Chicago area.

    “The best part of my job is being with deaf and hard of hearing kids!” said June. “I get to play with them, talk with them and use recreation opportunites to teach them about life, responsibilities, leadership and communication.”

    June runs the Adult Role Model in Education of the Deaf (ARMED) program and does approximately 65 presentations per year. The program sends a deaf or hard of hearing role model to different schools and the students get a chance to learn about professions and ask questions. For students with Ushers Syndrome, June arranges it so that each student can have one-on-one time with the role model to ask questions about being deaf blind.

    There were many memorable role models throughout the years, but Chef Matt Krueger from Indianapolis stood out. “He did a cooking demonstration with the junior high kids,” said June. “It was a hands-on kind of role model instead of the usual presentation.”

    June sets up a variety of activities throughout the year. A lot of her time is spent making arrangements for the event and making sure that releases are signed and transportation is arranged. “The worse part of the job is waiting for parents to pick up their kids,” said June. She once waited at a police station for three hours when a parent finally showed up at midnight. June also runs a Leadership Workshop where the kids learn leadership skills and gain confidence. June helps them identify areas of strength and work on things they can improve.

    The kids often look up to June as a role model but June recalls taking a SCUBA class for the first time with a group of deaf and hard of hearing teens that turned into a teachable moment. “The teens struggled with the SCUBA textbook, but it was easy for me. However, in the lake, the teens did every skills test and passed easily while I struggled in the water, due to my ears. It was nice for the teens to see me struggle.”

    “I hope and I feel like I’m giving back to the Deaf Community through the Youth Program,” said June. “I enjoy giving the deaf and hard of hearing kids the positive aspects of life, recreation, communication, Deaf Culture and so on.”

    June takes great delight in seeing the positive outcomes of her program among the deaf and hard of hearing kids as they grow up. A high school student recently came up to her and recalled a lesson that she learned in sixth grade. Another student had a very resistent attitude about deaf role models as a younster, but grew up to seek out positive deaf role models after June introduced him to a deaf pilot. June has seen attitudes change and positive self esteem blossom as a result of kids meeting deaf and hard of hearing adults.

    “You never know who you impact, how you impact, when you impact, etc… until that day comes!”

  • The Impact of Hearing Loss on Kids

    Paula Rosenthal posted an interesting article from the Better Hearing Institute on her blog: One Million Youth in America with Hearing Loss May be Left Behind, National Survey Finds; Even ‘Minor’ Hearing Loss Causes Major Problems

    The study focused on unilateral and mild hearing loss and found that when left untreated, several areas of life were affected, namely:

    Social skills (52%)
    Grades in school and language development (50%)
    Emotional health (42%)
    Relationships with peers (38%)
    Self-esteem (37%)
    Relationships with family (36%)

    Also in the study was this quote:

    “Based on our findings, I am concerned that a sizeable population of young people in America is being left behind because they do not fit existing paradigms of hearing disability,” said otolaryngologist Dr. William Luxford of the House Ear Clinic, a BHI Board member and co-author of the study. “We need a fundamental re-examination of the current hearing health policies and protocols influencing America’s children with hearing loss.”

    Dr. Luxford is right. We do need a re-examination of the health policies and protocols. But those policies and protocols need to include a network of parents and hard of hearing adult role models as well as connecting kids with other kids. I would like to see that included in the solutions and perhaps we’ll see different numbers in the catagories above.

  • Captioned Radio–Don’t Read and Drive!

    Tim Poindexter over at Disaboom posted a recent release about captioned radio:

    Closed Captioned Radio? That’s Right, It’s Here!

    The first over-the-air broadcast is set for January 8, 2008.

    Back in April, 2006, the actual idea was demonstrated at a Broadcasting Conference: Harris Corporation and NPR Labs to Demonstrate New HD Radio Services for Hearing and Visually Impaired at NAB2006.

    I remember reading about this back on Jared’s Blog awhile back, but I didn’t pay attention to it much. The radio was something that has been off-limits in my life for so long, that I didn’t even think of the impact of captioned radio.

    I can imagine that captioned radio is going to be a great tool for adults and children with new implants as they’ll be able to use the radio to practice listening therapy.

    It’s going to be interesting to see how this develops. All radio transmissions are supposed to convert to digital by 2010. This doesn’t yet mean that all will be transmitting captions, but the capability is there.

    If they’re installing captioned radios in the front dash of a car– uh oh! I have a feeling we’ll be seeing some multi-tasking drivers out there.

  • Non-Fiction, Non-Captioned Movies

    Arrrghhhh!

    The oldest son has a few extra credit projects that include watching non-fiction movies from the library. The few movies that I found aren’t captioned, and have no English subtitles.

    I’m off to browse the Described and Captioned Media Program list to see what they have on there.

    We have encountered this same issue in the schools. I do wish that we could make it mandatory that all educational materials be captioned so we wouldn’t have to deal with trying to substitute movies or change the curriculum.

    When my oldest was in middle school, they showed several movies without captions. It wasn’t until about the fourth movie that my son finally mentioned it to me. We had a meeting at the school and I made it clear that they needed to provide every movie with captions. The team agreed.

    When Lauren entered middle school, the vice-principal called me to the school to inform me that the science teacher had a movie that wasn’t captioned. They couldn’t find a comparable movie that was captioned. The movie covered lab safety, the same movie that my oldest son previously sat through with an interpreter before we enforced the captioning issue. My daughter doesn’t use an interpreter. What could they do?

    Well, one option was to hire a CART interpreter at the tune of $90 to $119 per hour with a minimum of two hours. His jaw dropped. Or, ship the movie out to be captioned, which could cost a pretty penny. His jaw dropped more.

    In the end, the teacher created a powerpoint instead and showed that to the class instead of using the movie. The school is now in the process of going through all of their DVDs and identifying the ones without captions and looking to replace them with captioned versions.

    If we could just pass a simple law requiring all DVDs to be captioned or subtitled, think of the energy we’d save.

    After all, as Larry Siegel says, “The importance of communication and language for deaf and hard of hearing children is so basic as to be beyond debate.”

  • Do You Want to be on MTV? Read on!

    True Life: I’m Deaf

    Do you have severe or total deafness? Are you a deaf student, about to graduate and go out into the world on your own for the very first time? Or are you currently attending a school for the deaf but about to transition to a mainstream school? Perhaps you’re trying to find a job but experiencing difficulty because you are deaf? Are you hoping to get a cochlear implant or to be fitted for a hearing aid to significantly improve your ability to hear? Are you a member of an advocacy group, fighting to gain more rights or assistance for deaf people?

    If you fit any of these descriptions, MTV and Gigantic! Productions want to hear your story.

    MTV’s True Life is a long-running, award-winning documentary series where young people share their stories in their own words. We hope that, by allowing people to tell their stories and communicate directly with their peers, we can impact the way people interact and engage with the world they live in.

    If you appear to be between the ages of 16-28, and would like to share your story, please email us at casting@gigantic.tv and be sure to include your name, location, phone number and a photo.
    Since 2001, Gigantic! Productions, a New York City-based production company, has been producing hard-hitting, award-winning documentary programming for networks such as MTV and CMT. Please visit our website: www.gigantic.tv to find out more.

  • Heather Whitestone–From her Mom’s View

    When Heather Whitestone became Miss America back in 1995, I watched the pageant with great interest. This was the first time in history that a profoundly deaf contestant had become Miss America. A video clip of that moment can be viewed here: Video of Heather Whitestone.

    I read Heather’s book, Listening With My Heart shortly after it was released. Two weeks ago, my library had the book, Yes, You Can, Heather! on a display shelf. Written by Daphne Gray, Heather’s mother, she tells the story of raising a deaf child during a time when Auditory Verbal methods were not commonly known.

    Daphne shares the long hours that were spent on language and speech: “…I had to devote all my time after supper to working with Heather on her speech therapy as well as her schoolwork–and now the Beka material on top of it all. Some nights we’d finish so late that I’d send Heather on to bed at 10 or 10:30 knowing I’d have to wake her up before five the next morning so we could go over the words for her spelling test.”

    Daphne had an amazing amount of dedication to her daughter–and it helped that Heather had an amazing amount of drive to match.

    I found myself relating to Heather in a situation where Daphne tried to encourage Heather to be upfront and open about being deaf: “Like most teenagers, she wanted to belong and not stand out from the crowd. Usually she wore her hair in a style that covered her hearing aids. As a result, many of her high school classmates never realized Heather was deaf.”

    Yup, been there, done that. Did it so well that many students didn’t even know that I wore a hearing aid until a news article appeared in the high school newspaper featuring me and my friend Shawn, who was also hard of hearing. It took me nearly a year after I became deaf before I could wear my hair up in a ponytail with my hearing aid perched on my ear. Comfortably. In public.

    Daphne also touched on social bluffing and how difficult it was for Heather to participate in conversations. “Lunchtime was especially miserable for Heather,” Daphne wrote. “She found it nearly impossible to pick voices out of the constant roar of cafeteria commotion in her ear. That meant she had to rely almost totally on lipreading around the lunch table. ‘I get tired of asking my friends to repeat what I don’t hear,’ she admitted. ‘And I think somtimes they get tired of me asking. So I just laugh when the people around me laugh. That makes me sad. I want to be part of the conversation. But I’m not.’”

    That particular section of the book made me sad as well. I think it is so easy for us parents and professionals to get caught up in the accomplishments of deaf and hard of hearing people and forget that on a deeper level, if communication access isn’t accommodated for, then deaf and hard of hearing people still get left out of conversations and social situations. From what I see in my own district, there’s still a lot of social isolation going on and we’re not addressing the social/emotional issues of mainstreamed students.

    As for Heather, she has gone on to open her own company and line of beauty products. She’s married and has three little ones of her own. She’s a spokeswoman for the Starkey Foundation and Cochlear Americas and has bilateral cochlear implants.

  • Happy New Year!

    We may have looked a little wild last night, but it was actually very mellow and low key. Happy New Year to you all!


    And yes, that’s Ginger Ale, not champagne in the kid’s cups!


    Goodbye 2007–it was a nice year!