Author: Karen Putz

  • Disability Blog Carnival–Communication Allies

    The 33rd Disability Blog Carnival is being hosted by Ruth at Wheelie Catholic. The theme is Appreciating Allies.

    My tribute today is to the many interpreter and CART (real time captioners) allies that I’ve met over the years.

    I grew up hard of hearing, but I basically lipread my way through life. I didn’t know American Sign Language and I wasn’t introduced to it until I became deaf at the age of 19. Just a short time after I lost the rest of my hearing, I transferred to Northern Illinois University and stayed in a dorm that housed several deaf and hard of hearing students and Deaf Education majors.

    I struggled in my classes. I was dealing with horrible tinnitus–the endless droning sounds that refused to leave my head. I was trying to lipread the instructors as well as follow all the information that was flowing in each class. I used an FM system for a while, but all that did was amplify sounds that I couldn’t understand. In the classes where another student was using an interpreter, I discovered that I could lipread the interpreter much more easily than the instructors. By the second semester, I was requesting interpreters for all of my classes. At the same time, I was being immersed in American Sign Language in the dorms.

    I’m always thankful for that chain of events in my life, because interpreters and real time captioners have leveled the communication playing field for me. They’ve enabled me to attend conferences, group discussions, concerts and many other events. I use a videophone to make voice phone calls– I use a separate phone to talk directly to the person I’m calling and I watch an interpreter on my computer or tv as they interpret what is being said through the phone. The interpreters keep up so well that there’s almost no lag time. The first time that I used this system to call a long time friend, she thought I suddenly was able to hear over the phone.

    Over the years I’ve met some fabulous interpreters who I consider friends. They easily separate the role of interpreting and the role of friendship.

    I’ve also met some interpreters who have considered themselves as power players and some interpreters who downright shouldn’t be in the profession. I had one interpreter at a very important meeting who couldn’t keep up and all of the sentences were muddling together. After the meeting, I discovered that she didn’t pass the minimum level of interpreting and shouldn’t have accepted the assignment. I sent a complaint letter to the state’s Commission office but discovered that nothing could be done as the law “had no teeth” at that point. I later learned that this same interpreter was interpreting in the court system and at a local college. Enough people spoke up and limited her ability to take on assignments.

    But rather than focus on the ones that aren’t the allies– I want to take a moment to thank the ones that are. Thank you to the ones that tirelessly interpret video relay calls, tirelessly attend long events, tirelessly move your hands into accessible, meaningful communication.

    And a very special thank you to those who do it with a beautiful smile as well.

  • Send me to the SOBCon–Update

    You guys are fantastic– I’m now in second place for the “Send me to SOBCon” challenge! But it’s going to take more clicks to send me there!

    “Why would you want to hang out with a bunch of SOBs?” a friend asked me. I had to explain that this was a great group of people and in no way was “Son of a *&#%” a part of this conference. It is “Biz School for Bloggers.” I attended last year’s event and believe it or not, I was too shy to speak up much! Blogging was still relatively new to me back then.

    The SOBCon’08 will be held at the Executive Center in downtown Chicago.

    I’d like to be able to go and I can get there with your help (and your friends, and their friends, and so on!):

    Send Karen to the SOBCon!

  • 17-Month Old Toddler Learns to Read


    On the Today Show, a 17-month old toddler was shown reading off words like “kangaroo” and sentences like “Nice to meet you.” The parents are both speech therapists who signed with their baby when she was younger. The video, unfortunately as usual, isn’t captioned but you can see the mom signing in parts of it:

    The Today Show

    This brought back memories when my kids were little. I loved watching their signs emerge when they were toddlers. They learned their ABCs through fingerspelling. I would often fingerspell words in the bathtub along with the sponge ABCs that we stuck to the wall. Of course, the closed-captioning on the tv helped to speed along their reading skills. I’m a big fan of using all kinds of ways to get language going with kids.

    And way off the subject, I’m in second place for the SOBCon contest! One click from you can send me off to the SOBCon!

    Click here to send Karen to the SOBCon.

  • Dawn Nile’s Sister Speaks Out


    In the Chicago Tribune today, Dawn Nile’s sister, Heather, talked about how the family tried to investigate Dawn’s murder twelve years ago on their own. They didn’t get far by trying to investigate on their own. A family friend urged the local state’s attorney to get involved and two years ago, they began investigating the case, interviewing several of the Hinsdale South students who knew Dawn.

    Heather said, in the Chicago Tribune:

    “Someone does something horrible to your family — how long does it take to get over that?” Hunziker said. “I know the answer: It’s never.”

    I know that many of the students did not forget Dawn, as her name came up several times over the years. This morning, I received an email from a Hinsdale South student who saw her picture in the Sun Times.

    “God, I forgot how pretty she was…” he said.

  • Patti Phadke–Motherhood as a Calling

    For Pattie Phadke, motherhood was a calling that didn’t come easily at first. When her oldest child was born, Patti was thrilled to be a mom. Then she soon discovered that all of her time was devoted to the usual tasks of tending to babies, especially endless diaper changes.

    “Changing diapers was a boring chore that was repeated over and over!” said Patti.

    Patti knew that an attitude change was going to have to happen, especially if she wanted to have more kids.

    “I realized that I was very thankful about having a healthy baby,” said Patti. “So I changed my attitude and I looked at the diaper chore as a time to bond with my baby.” Patti used that time to sign to her baby and give her plenty of attention. Diaper changing became an enjoyable time instead of a dreaded chore.

    “I feel that motherhood is my calling,” said Patti. “From that moment until today, I enjoy having my kids so much!

    Patti’s oldest daughter is now in college and plans to become a doctor. Patti has three other children and she works part time as an ASL instructor at Columbia College in Chicago.

    Patti’s favorite quote: “If you give what you do not need, it is not giving.” This quote is from Mother Teresa.

  • 1981 Murder of Dawn Niles–Deaf Man Charged


    In 1981, Dawn Niles, a deaf student at Hinsdale South was found murdered in a Chicago area forest preserve. My husband was a student there at the time and knew Dawn. He described her as a beautiful, popular student.

    Gary Albert, a deaf man from Sugar Grove, is being held in a local jail with bond set at one million dollars.

    Here are the news stories:

    Long Journey for Justice

    Arrest is Bittersweet

    ABC News with transcript

    Southtown Star


    Victim’s Sweetheart Arrested 27 Years Later

    $1M Bond for Man Charged in 1981 Murder of Disabled Teen


    Man Charged in 1981 Murder

    Ex-Boyfriend Charged

    Bond Set for Man Charged in 1981 Murder

    Cases Never Go Cold With Someone Looking

    RIP Dawn Niles

    Sugar Grove Man Accused of Murder has Kane Record

    Dawn Niles–Justice Will Be Served

    Arrest is Bittersweet

    Update: Gary Albert is out of jail. His family posted the $100,000 bond.

    Gary Albert Pleads Innocent

  • DeafRead Folks– Send me to SOBCon!


    I’m rolling up my sleeves and asking every deaf and hard of hearing person in the blogosphere to help Deaf Mom accomplish an incredible feat:

    I need hundreds of hits on this link: Send DeafMom to SOBCon’08!

    What’s SOBCon, you ask? It has nothing to do with the expletive. It’s not even “Son of a buck!” as my Aunt Anna used to say.

    SOBCon is a blogging conference for Successful and Outstanding Bloggers. According to the website:

    “SOBCon08 is “Biz School for Blogging.” This year’s event tracks entrepreneur bloggers and corporate bloggers alike, with an innovative format and a stellar cast of speaker/instructors.

    Purpose
    The SOBCon08 program guarantees to send each attendee home with a Business Action Plan that can be immediately executed for measurable success. The “mastermind” teams in which attendees will be interacting will provide uniquely deep working relationships that are more meaningful than the business card trading found at other conference/networking events.

    I attended this conference last year and it was wonderful. I learned a few new things and was able to network with some awesome bloggers, including Liz Strauss, Wendy Piersall, Terry Starbucker and Phil Gerbyshak.

    I really, really want to go again this year. I want to meet Stephen Hopson, another deaf blogger who plans to attend. I want to sit down and talk to all the other bloggers from last year who I didn’t get a chance to know. And you, dear Deaf Read Community can send me there! The blogger with the most clicks from his/her blog to the SOBCon Event gets to go free!

    So I’m asking for the power of DeafRead bloggers to show how tight our Deaf Community is–if every single one of you DeafRead bloggers clicks on this link, you can send Deaf Mom to the SOBCon!

  • One Family Beats the Divorce Odds


    While I was doing research for my Disaboom article on marriage, I came across Tina Calabro’s story in the Pittsburgh Post Gazette:

    Authors Counsel Parents with Special Needs Children.

    The author, Tina Calabro shared her own journey of handling the bumps in marriage after son was born. She also highlighted an excellent book: Married with Special Needs Children written by Laura E. Marshak and Fran P. Prezant.

    Tina and her husband were married six years when their son Mark was born. Her uterus ruptured during the birth and Mark had APGAR scores of 0,2 and 4 and was put on a breathing machine. Mark had an injury to the basal ganglia of his brain and was diagnosed with athetoid cerebral palsy.

    “My husband and I were very much in sync around the time of Mark’s birth,” said Tina. “We were stunned and overwhelmed by what had happened. We cried together and even found ways to laugh together from time to time, even though our situation was unbelievably serious.”

    Tina shared more:

    But we started to have conflict when Mark’s situation had stabilized and I began to shift into gear to get him every early intervention support possible. I was driven to do as much as I can to mitigate Mark’s serious developmental delays. My husband had a more wait-and-see attitude. “Maybe he won’t need all this,” he used to tell me. I would just think “are you crazy?” and keep rounding up services. It was so obvious to me that Mark was going to have serious impairment. I felt that I was doing the right thing by plunging ahead, even though my drive to do so was creating a rift between me and Dave.

    After about two or three years, the rift had become bigger. Over time, I had become the “expert” on Mark’s condition. Dave was a loving father to Mark, but I had assumed this managerial role in regard to the condition. So I guess you could say that I placed myself as a sort of supervisor of my husband’s care of our son. Not that I enjoyed that position. I used to wish that Dave could be as driven as I about Mark’s therapies. etc.

     

    Tina began to fear that her marriage was headed for divorce. Frustration was escalating between them and they couldn’t see eye-to-eye on Mark’s care. She sought out counseling with Dr. Laura Marshak and began to explore the reasons why the marriage was unraveling.

    “At the time, I felt that Dave and I were headed for divorce because we couldn’t get on the same page,” Tina recalled. “I was frustrated with him, and I’m sure he was frustrated with me. That’s when Laura (Dr. Marshak) said something that turned me completely around. She said, instead of essentially getting rid of Dave (not really ‘Dave,’ but really the frustration), how about trying to teach him WHY I do the things I do. Teach him the reasoning behind it, etc. Laura told me that from what she was hearing about Dave that he could be trained, so to speak.”

    At first, Tina recoiled at the suggestion. “I had enough to do without also teaching my husband on the intricacies of our son’s condition,” she said. “But, upon further thought, I realized that Laura was right. If Dave learned the ‘why’ of what I was doing, he might come on board.”

    Counseling helped Tina to communicate with Dave and the two of them began to shift their perspectives and division of care for their son. Dave became fully involved with his son’s care and began to specialize in taking care of Mark’s technological needs.

    Today, Mark is an honor roll student who attends his local elementary school powering along in his wheelchair and using a communication device to connect with the students and teachers.

    As for Tina and Dave, they’re still together.

    Says Tina, “We’re celebrating our 20th anniversary this year!”

  • Tree Wise Author on ABC News


    Karen Meyer featured deaf author, Antoinette Abbamonte, who wrote “Tree Wise,” a story about a tree teaching children about Deaf Culture.

    Antoinette is a deaf actress who was featured in the film, “Wrong Game” along with Chicago local, Liz Tannebaum. She’s also found in the video, Sign and ABCs.

    You can view the entire ABC interview here:

    Mom’s Book Teaches Kids about Deaf Culture.

  • Parody of “We Didn’t Start the Fire”

    The middle kid came home from school two days ago and mentioned that one of her teachers played Billy Joel’s, “We Didn’t Start the Fire” in her history class. She was given the lyrics and mentioned that she didn’t even understand what half of those historical mentions meant.

    So I slapped “We Didn’t Start the Fire” in the CD player and we talked about some of the history that was covered in there. Did I mention that Billy Joel is one of my favorites?

    Yesterday morning, she got up out of bed and said, “Mom, I can’t get those lyrics out of my head!”

    Billy Joel did a great thing for kids all over when he wrote that little ditty of a song.

    So today, when I spied this over at Meryl’s Blog, I just had to take a look:

    We Didn’t Start the Fire (amusing video with lyrics and original song)

    and

    Here Comes Another Bubble (amusing parody).

    And like I told my daughter, Marlee Matlin can be seen in the original:

    Billy Joel–We Didn’t Start the Fire.